You can read of Noah’s Journey here.
People want updates.
People want to know how sweet little baby Noah is doing.
People want to know if it was a good day or bad day.
People want to know if he has improved or gotten worse.
I wish it was that easy to define.
Attempting To Put Words To Health
When we try to explain what is happening to Noah, we even get confused. Stephanie is a Registered Nurse and the hospital is not foreign territory to her. Medical conditions, drugs, terminology, and lingo is piece of cake for Steph. Shoot, I am not even that bad after working 2 years on an ambulance.
Even the nurses say, “You seem very comfortable in the ICU. Most parents are about to lose their minds.”
“Thanks?” Not sure if that is a compliment or not.
But when we try to explain the dilemma and condition Noah is in right now, it is hard. When the doctors, nurses, and the rest of the medical staff are struggling to understand Noah, it is hard to define his condition.
Sure, he has ASD and VSD. He has also come down with RSV, para influenza, and bacterial pneumonia. But what do you call it when you mix all this junk together?
I DON’T KNOW!!
We don’t know his current medical condition in detail. We know we have just started this journey and that is about it.
Using Words To Explain Emotions?
How are we doing?
I have no clue. I was hoping you could answer that for us.
Replay Last 4 Days
Last Thursday morning, we had 2 kids with colds in our house. 1 kid who we are trying to figure out a better education solution.
Thursday, Stephanie took Noah and Stephen to the cardiologists for Noah’s appointment. First time I have not been to a more serious doctor’s appointment.
Thursday: Noah was diagnosed with ASD and VSD. Open-heart surgery would follow in a couple of weeks.
Friday, Stephanie went to a meeting to try to resolve some issues with Fayth on the education side. Then I got the first call. Noah wasn’t doing well.
Then the second call. Noah was doing worse.
Last call that sent me out flying in my truck home. Noah had become lethargic and pale.
Friday: Noah was taken to Primary Children’s Hospital and admitted immediately. A close friend of ours took Stephen and Fayth for the rest of the day.
Saturday: Noah got worse. We pushed the medical staff to take him to ICU. Noah almost crashed on us. There were a few moments where we didn’t know what was going to happen.
Sunday: Noah developed an additional bug in bacterial pneumonia. He was intubated and is drawing too much attention from medical staff.
Using Words To Understand
I can’t even begin to explain what is happening to us emotionally and psychologically. Not to mention, what is happening to us spiritually.
Last night as I was walking with Steph I asked her, “How are your emotions? Do you need to cry?”
“Probably, but I just feel like I don’t have time to cry right now.” Steph honestly explained.
I get it. I understand Steph’s position. Remember, this is not a our first rodeo. Open-heart surgery is not new to us. I know Steph will have to let loose soon, but in due time.
However, when Fayth had open-heart surgery, she was our only child. Now we have 2 other kids.
We are spending enough time just trying to get a grasp on the current situation. Let alone looking ahead to the surgery.
The answer to all of those questions is, YES. Well, okay, maybe NO.
If you could just tell me what today is, that would be great.
Loving The Support
Yesterday morning, Stephanie’s parents were already halfway to Salt Lake City from Phoenix. Then my parents left from Los Angeles to arrive late last night.
All day yesterday, it seemed like there was more and more support through prayers.
All we can say is that it means the world for us and for Noah.
The comments, emails, and posts have been a great breath of fresh air.
Relying On Spiritual Words To Communicate
“11For who knows a person’s thoughts except their own spirit within them? In the same way no one knows the thoughts of God except the Spirit of God. 12What we have received is not the spirit of the world, but the Spirit who is from God, so that we may understand what God has freely given us. 13This is what we speak, not in words taught us by human wisdom but in words taught by the Spirit, explaining spiritual realities with Spirit-taught words.” – 1 Corinthians 2:11–13
We want to understand everything, but sometimes that is just not the case. However, we have a better answer.
God is sovereign and he will be victorious.
This journey is long and rough, but God has a work to be done.
Can I explain this in human terms with human understanding? No, sorry.
All I can say is please seek the Spirit who communicates in ways unknown to our flesh to pray for Noah.
We are confident.
We are victorious.
We are more than conquerors.
We are God’s children.
We are loved.
We are accepted.
We are empowered.
This is how we would explain how we are doing. And this is how I would share with everyone how to pray for us.
Through the Spirit of God who speaks all truth in all situations beyond our understanding.
Praise Jesus that we can approach his throne with confidence.
Hope this helps.