In 2009, when Fayth was only 3-months old, she went in for open-heart surgery. When Fayth was born, she was not only born with Down syndrome, but also with a heart defect, AVSD. Atrioventricular Septal Defect is where there is one large whole in the dividing wall of the heart. You can read more about it here.
If you want to read more about Fayth’s story, you can read it here.
But for today, there is another focus.
Another Abnormal Condition
On August 30th of this year, Noah Dean Buckley was born. From very early on, Stephanie and I had just wondered if there was something not quite right with Noah. I know that sounds bad, but it is true.
Then again, we wondered if we were just a little more sensitive because of Fayth’s history.
We kept progressing with Noah, but he struggled. He struggled with eating. He struggled with breathing. He struggled with weight. But still we weren’t sure what was happening.
In the back of our mind Stephanie and I just wondered.
Over the past 3 or 4 weeks, our family has really experienced a roller-coaster of emotions and problems.
While in Arizona for Christmas, all of our kids got sick. Noah got really sick and we needed to take him into the hospital.
At the hospital, we found out that Noah had pneumonia. We were honestly relieved. We felt as long as it wasn’t RSV, we would be good with everything. But then everything turned.
The following day we were called by the ER doctor and told that Noah seemed to have an enlarged heart.
“WHAT?!!! You have got to be kidding me?”
Can we go through this again?
Another heart issue for another one of our kids?
Lord, please no.
Narrowing In On The Diagnosis
Finally, on January 15th, we went into the cardiologists. And we got an answer to our wondering. Good or bad, we got an answer.
Diagnosing The Heart
With much anticipation, we heard the results of the echocardiogram.
Noah Dean Buckley has 2 holes in his heart.
One hole is in the atrial wall of the heart, ASD – Atrial Septal Defect.
The other hole which is larger is in the ventricular wall of the heart, VSD – Ventricular Septal Defect.
So what does this mean?
Noah Dean will be going into open-heart surgery soon. Soon is a couple of weeks in the surgical field. We have yet to set a date on the surgery, but are waiting in anticipation.
I know many people are asking about Noah, so I wanted to get the ball rolling hear on this blog.
If you want to follow his progress, you can just sign-up here and you will be email updates every time I post more information.
Fayth’s journey was tough, but we were still blessed through the whole process.
Now we just simply get to tell another story. Don’t get me wrong, this is not easy for us, but we are doing well for now.
Here’s to praying for Noah Dean Buckley.