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Noah’s Journey

Open-Heart Surgery Date Has Been Set

Open-Heart Surgery Date Has Been Set

Let’s just say, life has been a bit out of whack over the past 2 weeks. I know there are many who have been waiting for an update on Noah’s status. Stephanie suggested that I send out an update. So here we go. A week ago, we were given a date for Noah’s open-heart surgery. March 11th is Noah’s Open-Heart Surgery Date On March 11th, we will head into Primary Children’s Hospital in Salt Lake City for Noah’s surgery. What that fully entails in exact detail, we do not know right now. As the date gets closer, we will learn ... Read More »

Tough Decisions NOT Desired

Tough Decisions NOT Desired

Follow Noah’s Journey Here. Last week in the midst of our stay in the PICU, Stephanie and I had many tough conversations. Discussions involving the short-term and long-term decisions that will help Noah and our family. With the first battle of RSV and pneumonia coming to a close, we are now stepping into the next battle. The Preparation For Open-Heart Surgery When Fayth went in for open-heart surgery to repair her AV Canal or AVSD 5 years ago, we had to make sure she didn’t get sick. She became a “bubble baby.” Many from Arizona remember that time for us. ... Read More »

Listen To Noah’s Open-Heart Surgery Story

Listen To Noah’s Open-Heart Surgery Story

After writing for the past few days, I wanted to share our story in a different way. Writing is not something that comes easy to me, but speaking on the other hand, I love. I talked to Steph and we both agreed that it might be more therapeutic for me to speak out our journey so far. So yesterday, I sat down behind the mic and spoke out our journey up to this point. Listen To The Story On iTunes For some of you, this is a much better way to follow along or at least know the whole story. ... Read More »

Why I Will Not Trade Our Family Nor Battles

Why I Will Not Trade Our Family Nor Battles

You can read more of Noah’s Journey here. As I was driving back to the hospital last night, Stephanie and I chatted on the phone. She was walking back from just taking a nap. It was one of the rare times one of us was not by Noah’s bed side. My parents had taken their turn of watching Noah. Steph and I got into a few more deeper conversations about this whole experience. We talked about the emotions, the events, and the future to come. Then I had to share my deeply rooted heart in the matter. This life and ... Read More »

Words Cannot Define Everything That Has Transpired

Words Cannot Define Everything That Has Transpired

You can read of Noah’s Journey here. People want updates. People want to know how sweet little baby Noah is doing. People want to know if it was a good day or bad day. People want to know if he has improved or gotten worse. I wish it was that easy to define. Attempting To Put Words To Health When we try to explain what is happening to Noah, we even get confused. Stephanie is a Registered Nurse and the hospital is not foreign territory to her. Medical conditions, drugs, terminology, and lingo is piece of cake for Steph. Shoot, ... Read More »

Why Is This Happening?

Why Is This Happening?

“God, can I just ask why?” We know we aren’t the only family who has experienced hardship or challenges. We know we aren’t alone. We know many others have had it worse. But the WHY is still there. Should I sugar coat it or cover up our emotions? Should I sit here and act like we got it all together? For now, NOPE. Do I feel like our life is in shambles? No. However, I have enough flesh that wants to know the reason why. Why is this happening to us? Why do we have 2 children who will have ... Read More »

Open-Heart Surgery Part 2

Open-Heart Surgery Part 2

In 2009, when Fayth was only 3-months old, she went in for open-heart surgery. When Fayth was born, she was not only born with Down syndrome, but also with a heart defect, AVSD. Atrioventricular Septal Defect is where there is one large whole in the dividing wall of the heart. You can read more about it here. If you want to read more about Fayth’s story, you can read it here. But for today, there is another focus. Another Abnormal Condition On August 30th of this year, Noah Dean Buckley was born. From very early on, Stephanie and I had ... Read More »